Friday, September 7, 2012

Meet the Sisters Salmon

Hi! And welcome to our blog.  I guess I could start out by explaining how it is we came up with our blog name. My name is Cora, and I am a wife, and a mom to 4 amazing kids. My oldest daughter, Ashlynne, is 9 years old, and has a rare skin disorder called Ichthyosis (for more info on this you can visit the FIRST website). Because of her skin disorder and looking differently, she has always been drawn to rare animals, and all of the creepy crawly things that most people wouldn't consider to be beautiful. She, however, finds beauty in all of these things, which I find to be incredibly heartwarming, and sometimes, downright hillarious.

 On our recent trip to the bi-annual FIRST Confernece in Denver, CO this summer (where we finally met Jordan in person for the first time) we stopped at a huge Bass Pro Shops. Right when we walked through the door, there was a huge bin of 4 1/2 ft tall giant fish pillows. Ashlynne immediately focused in on one, and carried a giant stuffed salmon around the whole store. I had to make her put it back, because looking ahead, I didn't know how we were going to fit that, and all of our luggage, plus all of us back in the car when we headed back to KS 4 days later. She was none too pleased. Somewhere along the way, she had named this fish "Sweat Salmon".
  When we got back to the hotel that night, all she was talking about was that ridiculous sweat salmon, and it very quickly became an inside joke between all of us. We she started getting tired and cranky at night, Jordan and I nicknamed Ashlynne "brat Salmon". I became "Mommy Salmon",  and Jordan and I somehow became "Sister salmons".
  So that is the long and short of it. A 9 year old and her quirky love for all things strange became the inspiration for our blog name. But more importantly, this 9 year old, and her struggles, and my desire to help her be comfortable in her own skin, took me to Denver, CO this summer, where I was finally able to meet one of my best friends, my "sister salmon".

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